Friday, April 28, 2006

Re-Examining the Becky Bell Story

It is a well-known statement, made by abortion right advocates that  an Indiana parental consent abortion law led to Becky Bell's death.

Rebecca (Becky) Bell was the daughter of Bill and Karen Bell. Becky lived with her parents and brother in a small town near Indianapolis, Indiana. Becky became pregnant her junior year of high school in 1988, unknown to her parents. Around 4 months into her pregnancy, Becky became mysteriously ill and suddenly began her menstrual period. Despite medical efforts, she died from hemorrhage and an infection which destroyed her lungs.  The details surrounding her death are contraversial. Both Becky's parents and abortion rights advocates claim that because Becky was unable to obtain a legal abortion due to Indiana's parental consent laws, she saught an illegal abortion which caused the infection that cost her life. Anti-abortion advocates argue that Becky had miscarried and the lung infection, caused by a common form of pneumonia, killed her. I think both sides carry some truth to the story. In this entry, I will be looking at the legal facts, medical information, and personal testimonies to provide a broader explination of what may have occured, leading to the death of Rebecca Bell.

The Law
According to Indiana Code 16-34-2-4: Written consent of parent or guardian of unemancipated pregnant woman under 18 years of age; conditions of waiver; representation by attorney; appeal; confidential records; emergency abortions
Sec. 4. (a) No physician shall perform an abortion on an unemancipated pregnant woman less than eighteen (18) years of age without first having obtained the written consent of one (1) of the parents or the legal guardian of the minor pregnant woman.
    (b) A minor:
        (1) who objects to having to obtain the written consent of her parent or legal guardian under this section; or
        (2) whose parent or legal guardian refuses to consent to an abortion;
may petition, on her own behalf or by next friend, the juvenile court for a waiver of the parental consent requirement under subsection (a).
    (c) A physician who feels that compliance with the parental consent requirement in subsection (a) would have an adverse effect on the welfare of the pregnant minor or on her pregnancy may petition the juvenile court within twenty-four (24) hours of the abortion request for a waiver of the parental consent requirement under subsection (a).
    (d) The juvenile court must rule on a petition filed by a pregnant minor under subsection (b) or by her physician under subsection (c) within forty-eight (48) hours of the filing of the petition. Before ruling on the petition, the court shall consider the concerns expressed by the pregnant minor and her physician. The requirement of parental consent under this section shall be waived by the juvenile court if the court finds that the minor is mature enough to make the abortion decision independently or that an abortion would be in the minor's best interests (1).

Why don't teenagers tell their parents of their pregnancy?
In my personal experience of working with teenagers facing an unplanned/unwanted pregnancy and I'm sure family planning clinic workers can echo this, the common reasons given are:
Fear of rejection, dissapointment, stigma, legal reprocussion, abuse, and/or unsupportive parents; independent/self-sufficient; doesn't wish to burden guardian/care provider

What percent of teenagers tell their parents about their pregnancy freely?One study dated from 1982 shows 37% told the mother and 26% told the father (2).  More recent research has found "Many adolescents had talked to parents about sexual issues (50–80%, depending on the topic) and reported high levels of connectedness with parents (68%). A substantial minority (19%) perceived that parents disapprove of their both having sex and using birth control. The majority (60%) reported that a parent knew of their [family planning] clinic visit; such reports were most common among those who had high levels of connectedness to parents and communication with parents about sexual issues, and those who did not perceive parents to disapprove of sex and birth control." (3)

Testimonies

Introductions
This is Karen Bell's story: 'Becky and I were very close. She was an easy child, gentle and innocent. I would worry sometimes about my son, Billy, but never about Becky. She loved horses, music, school and life itself. When Becky was 16, she began dating a friend of Billy's. She was crazy about him. He was a rebel and completely different from her, but that's who she loved.

Soon after Becky turned 17, I noticed that she seemed quieter than usual. One evening she asked to go to a party on the south side of town. I said, "Becky, I don't want you to go to the south side, it's not safe there." I had a feeling that something wasn't right, but my son said, "My God, Mom, let Becky go. You protect her too much, and she's been sad lately
I let her go.' (4)

Gannett News Service Article Dated November 24, 1989
Abortion Law: Fatal Effect?

' Rebecca Bell died at age 17 because she was afraid to talk to her parents.

For years, she had treated her mother like her best friend, but that was before she got pregnant. After that, Rebecca hid her medical condition from her family, convinced they would throw her out of the house.

 She tried to get an abortion near her home in Indianapolis, Ind., but was turned away because state law required her to get approval from her parents. In the end, she died in silence, after hemorrhaging for hours and developing pneumonia from an abortion-related infection.

''She loved (her parents) so much, she couldn't bear telling them,'' said Heather Clark, Bell's friend and the only person who know about the pregnancy.

Now, all Rebecca's parents can do is decorate their daughter's grave and wonder why Rebecca had to suffer by herself.

How Rebecca's abortion occurred remains a mystery. Her mother believes Rebecca got an illegal abortion. Rebecca's best friend thinks she had a spontaneous abortion.' (5)

Becky's Life
' The Bells never thought this would happen to their daughter. The blonde-haired, blue-eyed girl was a cheerleader in junior high, and often bubbled with enthusiasm. She kept posters of James Dean and Marilyn Monroe on her bedroom walls, and was almost always fighting for some cause.

One year, she raised money for the Humane Society, turning cartwheels for cash until her hands were covered with blisters, her mother said. Before she died, she had become interested in the plight of the American Indian.

For years, the Bell household was filed with Rebecca's friends. They remember spending some time with the family eating pancakes, which Rebecca's mother made in the shape of bunnies, with chocolate chips as eyes.

Among her closest friends was her mother. They were so close—they even discussed sex.

"I just can't imagine doing anything. It just makes me sick,'' Karen Bell remembers her daughter telling her.

''Then,'' she said, ''she met this monster.''

Rebecca's last love was a high school dropout, according to family and friends. They claim he was violent and introduced her to drugs.

''It was a sick love,'' Clark said. ''She was so obsessed by him.''

Clark said she knew that Rebecca and the boy had been having sex, but that he swore to Rebecca he was sterile because of some early childhood disease. And before long, Rebecca feared she was pregnant, which her mother learned about through a family friend.

Karen Bell rushed her daughter to Planned Parenthood for tests, which proved to be negative. Later, she and her husband put Rebecca in a detoxification center for seven weeks, to rid her of her new drug habit.

''Becky, I don't want to go through this again,'' William Bell recalls telling his daughter.

But Rebecca remembered that conversation differently, Clark said, recalling repeatedly that her parents told her if she messed up one more time, she'd be thrown out of the house.

The Pregnancy

So, when Rebecca feared she was pregnant the second time, she confided only in Clark. Together, they went to Planned Parenthood, where a counselor confirmed their fears and told them about the Indiana parental-consent law, Clark said. '  (5)

' So when 17-year-old Becky learned that she really was pregnant, she turned to her best friend Heather for help. Together they explored her options.' (6)

' ''I hate this baby. I cannot have this baby. This is the devil's baby,'' Rebecca told Clark after leaving the clinic. ''She just thought her boyfriend was such a bad person that the baby would have to be, too.'' ' (5).

If Becky were to get an abortion in Indiana, she would have to tell her parents. After being threatened with being thrown out of the family home, Becky rejected that option. Perhaps Becky could drive to Kentucky for an abortion. Perhaps she could go to a home for unwed mothers in California. Becky seemed undecided.'(6)

The Final Days of her Life
' One Saturday night, Rebecca came home late, even though she was supposed to spend the night with a friend.

''Mom, forgive me. I know I'm late,'' her mother recalls her saying. ''I wanted to be home in my own bed. Mommy, I'm so sick. I feel like somebody put something in my drink.'' '(5)

' "I was laying awake in bed waiting for her to come home. At 12:45 in the morning, I heard her trying to open the door. She was crying, and said, "Mom, it was a horrible party. I feel like I've got the flu like Dad." Beck never lied; I never doubted what she said. I told her to go to bed and she would feel better in the morning. '(4)

' Karen Bell believes her daughter had someone try to induce an illegal abortion that night. ''She'd gone to a bad part of town.'' she said.

Clark insists her friend did nothing of the sort, saying Rebecca talked about getting a legal abortion in Kentucy until she died. She thinks Rebecca had a spontaneous abortion. ' (4)

This is one place where there is conflicting testimony. Did she go to a friend's party or to get an illegal abortion? There are a few indications that  Becky was still undecided as to whether or not carry her pregnancy to term 1)Her pregnancy was progressing and she was already in her 4th month, an indication of indecisiveness and inaction. And referring back to the testimony of her friend Heather Clark, 'During the four months of her pregnancy, though, Rebecca wavered about her decision, Clark said. She contemplated a trip to a Kentucky abortion clinic or running away to California, where she planned to have the baby and put it up for adoption. Most of the time, she said, Rebecca favored the abortion, but she kept postponing her trip out of state. ' (5) Receipts and notes found in her purse at a later time by her mother would verify this (5). But back to the present:

' But she did not [get better]. After school on Monday, she still felt sick. By Wednesday she had a fever of 104 and a strange cough. I told her we were going to the doctor. She turned white. She said, "Mom, oh Mom, please, oh please, I don't want to go. Just give me some aspirin, I'll be okay, please, please."

She was nearly hysterical, so I respected her wishes.'(4)

' ''She had a real sharp pain in her chest,'' Clark recalled. ''She knew if she went to the doctor, they'd be able to tell (she was pregnant), and the doctor would tell her parents.''

Rebecca told her parents she had the flu, which her father believed since he'd just recovered from a similar illness. The flu, however, was really pneumonia, triggered by the infection in her womb. The Bells said they repeatedly tried to persuade their daughter to go the doctor, but she refused. ' (5)

This is another point of conflicting information. Was there a uterine infection as well as damage, indicative of a clandestine abortion preformed on her? Was the pneumonia in her lungs triggered by a possible infection in her uterus or a seperate occuring illness?

' By Thursday, ''She was so sick, she could not breathe.'' Clark said. ''She couldn't lay down all the way.''

Still, Rebecca asked Clark to make a Saturday appointment at the Kentucky abortion clinic. As she lay dying, Clark said Rebecca requested she call one of her friends, who'd gone to the Kentucky clinic. That girl described the procedure to Rebecca.

All the while, Rebecca's mother had no clue what was going on. She didn't understand why her daughter kept muttering, ''Nothing's happening.'' Now, she realizes that Rebecca was anxiously awaiting the onset of a miscarriage. ' (5)

It is not unheard of for a woman undecided and unsure about how to progress handling the pregnancy to wait and hope that the pregnancy will take care of itself, ending in a miscarriage. A book entitled, In Good Conscience: A Practical, Emotional, and Spiritual Guide to Deciding Whether to Have an Abortion, advises, "Don’t Wait for a Miscarriage: A miscarriage will not save you pain or having to deal with your pregnancy." (7)

That Friday Becky began to bleed.

'...perhaps in an attempt to strengthen her to fight the ravaging infection in her lungs, Becky's body rejected her unborn baby.'(6)

''Mommy, I started.'' she said with a smile, her mother recalls, thinking that meant her daughter had started menstruating. She said she thought it was odd her daughter was happy. Rebecca usually dreaded her period since she often had cramps.' (5) Once the bleeding began, Becky, having probably though her pregnancy over, agreed to see a doctor. But the damage had already been done.

' She was so weak that my husband and I had to carry her to the car. The doctor sent us immediately to the hospital. We put her in the backseat and she asked me to sit next to her. I held her close. '(4)

Neither she nor her husband learned about the pregnancy until they talked to a doctor at the hospital, who said, ''I don't know whether we're going to be able to save the baby.'' ' (5) ' Karen Bell recalled that she told the doctor, "Never mind that baby! Save my baby!" '(6)

'The nuns and nurses at St. Vincent Hospital, where we have taken her for everything, kept asking Beck, "What have you done to yourself?" I heard the nurses say her veins had collapsed. They put oxygen on her, but Becky pulled the mask off. I leaned down and said, "Honey, tell Mom, tell me, honey." She said, "Mom, Dad, I love you, forgive me." And that was it. Her heart stopped. '(4)

' Bill and I went home. I don't know where Billy went. I don't know where anybody went. There are no words to describe how Bill and I felt. We just kept saying, "Oh my God, my baby, oh my God." '(4)
At Becky's funeral, the minister gave the following advice, 'Becky did not have to die,'' the minister said, urging the children always to seek help. ''You can never make a mistake or commit a sin that cannot be forgiven. . . . Don't count your parents out. Even though you may not have the greatest relationship, they love you and are in your corner.''

'I told Bill that I did not want people talking about Becky. We grew up in a small community. Everybody idolized us. We were the perfect couple -- the perfect family. I didn't want people to call her a whore. We agreed to say that Beck died of pneumonia. It wasn't a lie. The death certificate listed the cause of death as septic abortion with pneumonia.' (4)

' ''If only she'd been able to go to a clean place and take care of herself,'' Rebecca's mother said. '(5)

Actually, the autopsy report said septic, abortion with pneumonia."

So apparently the coroner told the Bells that their daughter had died of an illegal botched abortion. However, based on the death certificate, the correct term would of been a septic abortion with pneumonia. There is a difference. What the report indicates is Becky had sepsis, infection of the blood, spontaneous abortion (miscarriage), and pneumonia. Also, there's a strong indication that Becky's parents were concerned with stigma and their reputation and would of supported Becky in choosing an abortion anyways.

' Desperate to find some meaning in their daughter's death, the Bells latched onto the term, "septic abortion." Perhaps, like most laymen, they didn't realize that a miscarriage is a form of abortion -- what's called a "spontaneous abortion." That still leaves the mystery of where the work "septic" came from, since according to the coroner's report, Becky's reproductive tract was healthy and free of injury or infection. But however the idea arose, Becky's family decided that Becky must have sought an illegal abortion. Abortion advocates caught wind of the story and recruited the Bells as spokesmen against parental involvement laws. '(6)

"Pro-choice" and Feminist organizations, especially Planned Parenthood and Eleanor Smeal's "Feminist Majority Fund," immediately seized on Becky Bell's death and stated as fact that it was directly caused by Indiana's parental consent laws. They dubbed Becky the "first known victim of parental consent laws" and launched massive media campaign and enlisted her parents to hit the talk show and lecture circuit to denounce parental notification and consent laws all over the country - the law that they claimed "caused Becky's death." As Ms. Magazine put it, "She Died Because of a Law." (8)
The Medical Evidence and Why Becky Died:

This event received a lot of media attention for awhile, until the National Right to Life Committee got a copy of the post-mortem report, which showed no sign of either induced abortion or infection in or near the reproductive organs. What the report did show was that Becky Bell died of a deadly and fast-acting form of pneumonia, similar to that which killed Muppets creator Jim Henson, which had neither originated in nor had affected the reproductive system. She had contracted this especially lethal form of pneumonia at about the same time that she had a miscarriage.
Various doctors have confirmed that Becky Bell did not die from an induced abortion. Dr. John Curry, former head of the Tissue Bank at Bethesda Naval Hospital, reviewed the coroner's pathology report. He noted that the report listed massive infection in Becky Bell's lungs and in other areas of her body, but there was no evidence of infection on the outside of her uterus or within it. He also stated that the germ that killed her was a common pneumonia germ "... which is unlikely to originate from a contaminated abortion procedure." (9)
The physician who personally examined Becky's body, Dr. John Pless, head of forensic pathology at Indiana University Medical Center, stated that "I cannot prove she had an illegal abortion. I cannot prove she had anything but a spontaneous abortion [miscarriage]." (10)

Former abortion provider Dr. Bernard Nathanson also concluded, after examining the medical evidence, that: "There is no infection in or around the uterus, no pus, no odor to the uterus, and no peritonitis. The serosa of the uterus is described as "smooth and glistening. In the case of a septic abortion, this tissue would be shaggy and discolored ... Indeed, there is no evidence for an induced abortion at all: no marks or stigmata of instrumentation in the genital tract ... In short, the cause of death here was probably overwhelming pneumonia unrelated to the abortion/ miscarriage." (11)

"I tracked down the doctor who performed Becky Bell's autopsy, Jesse Giles. Incredibly enough, Becky Bell's parents, who talk so glibly about what the autopsy report supposedly discloses, never bothered to talk to the doctor who wrote the report. When Giles wrote the word "abortion" in his autopsy report, he never imagined that abortion advocates would one day look over his shoulder and seize upon that word to promote their agenda. Giles used the word "abortion" in the way it had always been used in medicine prior to the national debate. He meant a spontaneous abortion. In short, he meant a miscarriage. If Giles had meant a deliberate, surgical abortion, he would have used the word "induced" to describe it. Giles told me that there is no evidence of an induced abortion, and in his professional opinion Becky Bell suffered a miscarriage." (12)
"Unfortunately, another pathologist stuck the word "septic" immediately before the word "abortion" on the report's cover page. That word has also been seized upon as proof positive that a botched, unsterile abortion had been performed. But the autopsy report has not the slightest evidence to support any "septic" condition in Becky Bell's uterus. The autopsy found no infection, no sepsis, no pus, no peritonitis, no odor, no discolored tissue, no infected blood. Indeed, the tissue lining Becky's uterus was described as "smooth and glistening," a state inconsistent with a "septic" diagnosis." (12)
Finally, Dr. Curtis Harris, president of the American Academy of Medical Ethics, consulted in detail with four leading specialists in the fields of infectious disease, infertility, pathology, and obstetrics/gynecology. The opinion of these five national experts was unanimous : That Becky Bell had an incomplete miscarriage ( not an induced abortion); that her uterus was not marked or infected at all; and that the cause of her death was pneumonia brought on by the aspiration of vomit, and that this pathology was not related to the miscarriage in any manner. (9)

The autopsy on her body was carried out by Jesse C. Giles, M.D., a pathologist in the Forensic Division of the Indiana University School of Medicine. Dr. Giles made a post mortem examination of the reproductive organs of Rebecca Bell and upon gross and microscopic examination of these organs found:

"The uterus, fallopian tubes and ovaries are present. They are of usual size and shape for age. No tumors are present. There is evidence of recent pregnancy with recent partial abortion. The uterus is enlarged consistent with current pregnancy of age approximately 2-3 months. The cervix is dilated uniformly without evidence of mucosal or submucosal injury. Extruding from the cervical os is hemorraghic and necrotic red-tan and grey-brown tissue consistent with products of conception. The lower third of the uterine cavity has only the flat mucosa without obvious evidence of instrumentation. However, the upper 2/3 of the uterine cavity has a mixture of blood clot and necrotic and hemmorraghic products of conception. There are no recognizable fetal parts, and the amniotic membrance has been ruptured, leaving only a small area recognizable as thin blue-tan glistening membranes. There is no evidence of hydatid mole or invasive chorio-carcinoma. The serosa of the uterus is smooth and glistening and without exudate, and there are no areas of perforation or pus in or around the uterus. The right ovary has a 1 x 1 1/2 x 1 inch bright yellow corpus luteum. The remainder of the ovaries shows unremarkable for age ovaries. There are no injuries of the vagina." (13)



Pro-choice groups comtinue to use Becky's death for their case against parental consent and notification laws, despite Becky quite possibly having had parents who would of supported her in her decision and despite her cause of death as massive pneumonia and septic shock, unrelated to her miscarriage or an illegal abortion.

Conclusion
Lastly, we cannot avoid the fact that even if Becky Bell does not fit NARAL's scenario of having died of an illegal abortion, it's quite possible that another girl someday will. An exaggerated fear of Mom and Dad finding out can be powerful even in teens from happy families. The existence of such typical adolescent fear is not an argument against the law; for the teen's sake, the parents have the right and obligation to assist in such momentous health care situations. Most girls will do what they always have--take a deep breath and go ahead and tell their parents (again, advocacy programs can make this step much easier). Yet there is no doubt that some desperate and confused young women will seek an abortion.
http://www.feministsforlife.org/FFL_topics/after/beckbell.htm

Footnotes:
(1) Indiana Code
http://www.in.gov/legislative/ic/code/title16/ar34/ch2.html

(2) Why Can't We Love Them Both
By Dr. and Mrs. J.C. Wilke
Chapter 28: Parental Notification and Becky Bell 
http://www.catholic.net/rcc/loveboth/chapter28.html

(3) Parent-Child Relations Among Minor Females Attending U.S. Family Planning Clinics
By Rachel K. Jones, Susheela Singh, and Alison Purcell
Perspectives on Sexual and Reproductive Health, 2005, 37(4):192–201
http://www.guttmacher.org/pubs/journals/3719205.pdf

(4) Medical Students for Choice
Becky Bell: A Mother's Story
Reprinted from Choices: Women Speak Out About Abortion, with the permission of NARAL.
http://ms4c.org/update/598bell.htm

(5) 1999 Child Custody Protection Act Hearing Before the Subcommittee on the Constitution of the Committee on the Judiciary House of Representatives
One Hundred Fifth Congress
Second Session on H.R. 3682
May 21, 1998
Serial No. 102
Pages 18 through 26
http://commdocs.house.gov/committees/judiciary/hju58271.000/hju58271_0.HTM

(6) A Tale of Two Abortions
By Christina Dunigan
cdunigan@hotmail.com
Featured Rightgrrl March 1999
August 15, 1999
http://www.rightgrrl.com/99grrls/March/Christina_D/abortion2.html  


(7) In Good Conscience: A Practical, Emotional, and Spiritual Guide to Deciding Whether to Have an Abortion
by Anna Runkle
Jossey-Bass Publishers, San Francisco, copyright 1998

(8) Rochelle Sharp, "She Died Because of a Law," Ms., July/August 1990, 80-81.
Linked from: http://www.gargaro.com/beckybell.html

9) Dave Andrusko. "They Have No Shame!" National Right to Life News , August 16, 1990.

10) Joe Frolik. Cleveland Plain Dealer , September 9, 1990, page 1.

11) Bernard Nathanson, M.D. "In Memoriam: The Becky Bell Story." Bernadell Technical Bulletin, November 1990, pages 4 and 5.

12) James A. Miller. "In Indiana and Maryland, a tale of two abortions" The Baltimore Sun, February 15, 1991

13) Autopsy report: "Rebecca Suzanne Bell." By Jesse C. Giles. Forensic Division, Department of Pathology, Indiana University School of Medicine, September 17, 1988, 7:30 A.M. Signatories: John E. Pless, M.D. (Forensic Pathologist, Division of Forensic Pathology) & Jesse C. Giles, M.D. (Fellow in Forensic Pathology, Division of Forensic Pathology).
Sources to use:
http://ms4c.org/update/598bell.htm
http://tigtogblog.blogspot.com/2006/03/anti-choice-spin-on-parental-consent.html
http://www.catholic.net/rcc/loveboth/chapter28.html
http://www.gargaro.com/beckybell.html
http://www.rightgrrl.com/99grrls/March/Christina_D/abortion2.html
http://www.feministsforlife.org/FFL_topics/after/beckbell.htm
http://commdocs.house.gov/committees/judiciary/hju58271.000/hju58271_0.HTM

Sunday, April 23, 2006

Article Response - When Anti-Choice Forces Get Their Way

When Anti-Choice Forces Get Their Way
http://www.feministe.us/blog/archives/2006/04/09/when-anti-choice-forces-get-their-way/
H/T to spacelover_itin feminists4life,
@ 2006-04-19 14:02:00

Since my response is long and thought out, I thought it'd be worth posting my reply here too.
"Don’t let anyone tell you that anti-choicers care about women. They don’t."

This is just slander, discredit us and discourage women from turning to us or trusting us. But anyways, there are many "anti-choice" women who also volunteer for a number of humanitarian causes including Habitat for Humanity, soup kitchens, food pantries, and battered women's shelters.

"Their ideal policies will turn women and doctors into criminals."

Um, yeah, this is just blatant stereotyping. Pro-lifers range in beliefs, not all believe criminalizing the woman would be beneficial or helpful.

"They will kill and maim women."

It is not the grusome image projected here of pro-life activists dragging women into back-allies where amatures are waiting with a rusty coat-hanger. In fact, in the time before Roe, the majority of abortions were preformed by physicians in good standing and nurse midwives. And pro-choice advocates insist on keeping abortion available through any means possible, no matter the danger such procedures pose to women. And even since legalization, NARAL and individual pro-choice advocates have continued to fight against legal measures which would protect women's health, such as required licensing for ambulatory surgical clinics (such as abortion clinics) and mandating the availability of proper sanitation devices and emergency equipment, and professional pro-choice organizations such as the National Abortion Federation (NAF) have continued to defend abortion providers in the matter of medical malpractice and negligence suits.
Below are examples of the results when pro-choice advocates continue to place protecting abortion rights and abortion providers over protecting women's health and safety in abortion procedures.
http://www.legalactionforwomen.org/
http://realchoice.0catch.com/collateraldamage.htm

"Women’s empowerment and reproductive rights are deeply and inexoribly[sic] related. Anti-choice activists aren’t interested in “saving babies,” or they’d be pushing for wider contraception access and universal healthcare[sic]. Instead, they’re willing to say anything — and I mean anything, no matter how obviously dishonest — in order to keep women indentured as servants to their biology."

We're not the ones who have a warped view of our ability to reproduce as a weakness or a disease to be remedied. Unintended pregnancy is only part of the problem. Rather than focusing alone on treating the pregnancy (i.e. abortion) we should be also be focusing on addressing the issues surrounding the pregnancy which make it a crisis. As for the last statment, can they back it with proof (not hypothetical nor personal anecdotes, nor stereotypes) to show that our beliefs are unerringly wrong?

"They are grounded in misogyny and outright lies."

Ah, more mud-slinging. When you're not able to rationally defend your position, resort to mud-slinging and stereotyping to discredit and silence opposing views.

“There does not exist any case in which the life of the mother would be in danger”? I think all the friends and relatives of the women who die in childbirth or during pregnancy would beg to differ. And I’ll bet a whole lot of doctors, and women with pre-eclampsia, HELLP syndrome and dozens of other conditions, would beg to differ, too."

I don't think the person they choose to quote adequately explained her position. I think she's saying that every effort can be made to save both mother and child (via c-section?) and using the technology available. Even so, most third-world countries lack proper nutrition and sanitation, as well as the money and technology for basic prenatal care non-the-less emergency ob. care. This is what we should be focusing on.

"Well, the “continent of hope” isn’t looking so hopeful when the women there remain second-class citizens and are tossed in prison for having the audacity to decide not to be pregnant."

Women should not have to be child-free or surrender motherhood in order to have financial/job opportunities and become successful. And this is where feminism has failed us, when we have become like men in order to succeed. And let us reiterate that abortion is often not chosen freely (like you might pick new clothing), but in a crisis situation and under duress.

"Many anti-choicers will tell you that they don’t want to punish women, and that they wouldn’t criminally penalize women who have illegal abortions. Well, they’re either liars or idiots. If we agree that life begins at conception, and that such a life is the moral equal of my life or yours, then ending that life through abortion is a murder equivalent to me killing you. Most anti-choicers will tell you that they believe a fertilized egg or an embryo or a fetus is a life equivalent to mine or yours (whether they actually believe this is doubtful, but let’s just take their word for it). How do you justify, then, allowing a woman to pay someone to end that life, but not prosecuting her? Wouldn’t you prosecute her if she hired a hitman to kill one of her born children? If you, anti-choicer, actually believe what you claim to, how do you justify not criminally prosecuting women who have abortions?"

They're angry because many of us don't fit neatly into their stereotype of pro-lifers and aren't absolutes. they want to paint us as and *gasp* we actually have compassion for the woman who finds herself in a crisis situation. Once again, our focus isn't punishing the woman, but providing better alternatives.

"The face of back-ally abortions has certainly shifted from the pre-Roe days, with advances in medical technology. If abortion were legalized today, chances are that fewer women would die from illegal abortions, if only because they have better access to medical care. But, as this article makes clear, there would still be a great distinction between what rich women have access to, and what poor women do."

True, it's been proven time and time again that it wasn't legalizing abortion which reduced the mortality rate, but advancements in emergency medicine and the discovery of antibiotics like penicillin. Although the poor and minority have a high abortion rate, I've found that it is the wealthy, not the poor, who are the most vocal for abortion rights. This is even described by Norma McCorvey herself in her book, "Won By Love" It seems the wealthy are using the poor as the icon for their cause so they can have their abortion services legal, convenient, and easy to access. It'd be interesting to have a poll and find out how many of the poor are actually in favor or legalized abortion.

Phew! Thanks for bearing with me ;-)

Friday, March 31, 2006

Favorite Childhood Books

Sometimes when I'm shelving the children's books at the library where I work, I'll come across a book that will bring up fond memories of my childhood and I'll secretly smile to myself as I briefly reflect on stories at bedtime when I was a child. These were some of my favorite books in particular:

Are You My Mother? by P.D. Eastman
The Boxcar Children by Gertrude Chandler Warner
The Berenstain Bears series (1980's through early 1990's) by Stan and Jan Berenstain
Buster Loves Buttons by Fran Manushkin
Curious George series by J.A. Rey
Dr. Seuss books
The Giving Tree by Shel Silverstein
Goodnight Moon by Margaret Wise Brown
The Little Critter series (1990's through today) by Mercer Mayer
Mooncake by Frank Asch
Sam and the Firefly by P.D. Eastman

What were some your favorite childhood books?

Wednesday, March 8, 2006

Pro-Choice Blogger Gives Abortion Manual for Amature Abortions

In light of the law passed in SD restricting abortion further, a pro-choice activist is giving medical instructions for those wishing to preform clandestine abortion procedures:

"For under $2000, any person with the inclination to learn could create a fully functioning abortion setup allowing for both vacuum aspiration and dilation/curettage abortions. If you are careful and diligent, and have a good grasp of a woman's anatomy you will not put anyone's health or life in danger, even if you have not seen one of these procedures performed."

It's frightening that she intends this information to be used not by trained medical professionals, but by untrained laypeople. The knowledge and the surgical skills needed to safely preform medical procedures aren't a hobby that can be learned overnight by an amature like backyard gardening or pottery. It takes years of intensive study and practice to become a skilled and qualified physician or physician's assistant I hate to say it, but with the number of trained medical professionals sympathetic to the pro-choice cause, why should we be encouraging untrained persons to preform abortions? Previous to Roe v. Wade, theraputic abortions were legally permitted to be preformed in hospitals when the woman's life was in danger and the majority of elective abortions were preformed by trained medical professionals in good standing, so why would that likely change?

Update:

It seems that the blog in question is no longer in existance and the blogmistress is taking a hiatus as of April 2007, however a re-print of the entry can be found here and here. If you visit either blog, while you may strongly disagree with them as I have, I ask that you don't engage in slander or threats, as it does not show good will on pro-lifers part. Also of interest, an interview by Bella Online with the blogmistress, Molly, can be found here.

Monday, February 13, 2006

Marie Claire Magazine Writing on CPCs

I found this comment from a visitor to Abortion Clinic Days
Hi there
I am a reporter for Marie Claire magazine working on a lengthy feature about "crisis pregnancy centers" and I love your site. I am looking to talk with women who have been deceived by CPCs. I am wondering if you can help. Of course I wouldn't expect you to divulge their identity to me, but if you could pass along my information, I would greatly appreciate it.

All the best
Siobhan O'Connor
Reporter, Marie Claire Magazine
I don't know much about this magazine's affiliations, but the first thing I noticed is that the reporter applauds the work of the abortionclinicdays blog owners, two abortion providers, indicating that she's likely an advid supporter of "choice". The second thing I noticed is the language of the reporter's request, "I am looking to talk with women who have been deceived by CPCs." The language the reporter chose indicates that the focus on the CPCs is likely going to be a negative one. First of all, she only wrote to a strongly pro-choice blog, and second, if she was really writing a balanced story, she could of chosen different words, such as, "I'm looking for women's experienes at a CPC", thereby inviting all experiences. Not all places that we call CPCs operate in the way we think of CPCs. There are some out there that are not duplicitous and dishonest, and those which are, are largely in the minority. Mostly the issue pro-choicers take with CPCs is political/ideological, CPCs do not provide or refer for birth control or abortion services. Evenso, a number of CPCs have been cooperating with the law and have been providing valuable support services to thousands of women who've chosen alternatives to abortion. I encourage you check in to your local CPC and their services, consider donating (volunteer time, clothing, baby supplies, etc). And if any of you ladies out there have had a positive experience at a CPC, share your experience with the magazine reporter too!

Also See my Article:
A Consumer's Guide to "Anti-Abortion Counseling Centers"

Update:
Ms. O'Connor has requested that I remove her e-mail address and I'm honoring her request. But in the meanwhile, feel free to continue to comment here or at Dawn Eden's blog. The English version of the magazine can be found at IVillage: Marie Claire Magazine and while I was unable to find Ms. O'Connor's business contact information, contacts for the magazine are:

Talk to Us!
MyMCLife@hearst.com
Editorial Offices
1790 Broadway
3rd Floor
New York, NY 10019
(212)-649-5000

Customer Service Department, Marie Claire
P.O. Box 7404
Red Oak, Iowa 51591
Toll-free Number: 1-800-777-3287

Second Update, Other Blogs Takes on This:
Fair, Balanced, Unbiased Reporter Seeks Info on Evil, No-Good, Very-Bad Pregnancy Centers
by Dawn Eden of The Dawn Patrol
Marie Claire: Making up the news--as long as it supports the pro-abort position
by Jacquefromtexas
You Can't Top Dawn Eden on Headlines
by JivinJehoshaphat

Marie Claire Magazine Writing on CPCs
by Christina of Real Choice

Third Update:
Jivin' J gives us an update in Unbiased reporter redux:
Not only did Marie Claire reporter Siobhan O'Connor leave a message at the blog of an abortion provider looking 'for young women 18-35 who have been deceived by' crisis pregnancy centers, she also sent an e-mail to the National Network of Abortion Funds, which in turn sent the suggestion out to their e-mail list. One place their e-mail can be seen is under the topic "Fake Clinic Stories" at the Maggot Punks forum.
In addition, through Google, I've found that Ms. O'Connor has also sent her request to the pro-choice, abortion activism website I'm Not Sorry.
Christina of Real Choice in addition, has made an excellent suggestion:
Let's flood her with stories of women satisfied with the services they got at CPCs. She said she wanted to tell a "balanced story." So let's take her at her word. If you have experience with a prolife pregnancy center, send her your story at: [see Christina's entry for the e-mail address - Rachael]
H/T to Jivin' J via After Abortion and Real Choice

Fourth Update:

Dawn Eden of the Dawn Patrol gives us an update in 'Meet the Interloper'
Turns out she found a willing participant in "iamnotanoctopus," whose real name appears to be Melissa*. Melissa's CPC "deception" didn't keep her from having at least two abortions, according to her blog — the most recent one last month [which was February - Rachael's note].

Fifth and Final Update:
It appears that this article was called off and never published. However, in August of 2006, another article on abortion was pusblished in the UK issue of Marie Claire, titled, "I had an abortion". The article focuses on the stories of 12 women who have had an abortion and are each pictured wearing a t-shirt bearing the same slogan (‘I had an abortion’) / The article coincides with a recently supported abortion rights event in the House of Commons which called for women to “Speak out and break the silence on abortion...”. It is also worth noting that within the Advice section at the bottom of the page, the contact details of Abortion Rights plus 2 abortion providers (BPAS and Marie Stopes International) are given. There is no reference to a pro-life or other such organizations.
http://www.marieclaire.co.uk/reports/I_had_an_abortion_article_88600.html
H/T to The Lady in the Pew

Original Comments Made for This Entry:

Christina wrote:
This really gets me. Why is it so much worse to be annoyed by prolifers than killed by prochoicers? Why is it that as long as the baby dies, it's a happy ending, even if mom dies, too, but if the baby lives, it's a heinous crime against humanity, no matter how happy mom is about it?
Of all the things abortion advocates do, this is the one that angers me the most. It shows so clearly what their priorities are, and how little women's well-being -- or even women's real -- matters.

Siobhan O'Connor wrote:
Hi there I am writing a balanced piece represending both sides of the equation--best not to assume what the piece is about befor it's out though I can see how the language might be misleading. Thanks for all the emails, but please now remove my email address from your website. I will check back for posts! Thanks

Rachael wrote:
Ms. O'Connor,
Thank you for stopping by. I have a feeling you only say this to appease us. I find your claim that you're writing a balanced story doubtable considering you publicly asked for only negative stories and the language you used strongly implies that it's going to be anything but balanced. Well, we'll see, but I'm not holding my breath.

Christina wrote:
Ms. O'Connor,
I have to agree with Rachael that due to the tone of your request, and where you went looking for input, that we're not holding our breath waiting for a balanced piece.
I'd suggest comparing dissatisfied customers of both CPCs and abortion facilities. I can refer you to Marla Cardamone's mom. Marla was browbeaten into an unwanted abortion at Magee Women's Hospital. Marla's abortion was botched, and she was left virtually unattended to die. I can also put you in touch with Kay Stile, whose daughter, Christi, was left in a vegetative state after her safe and legal abortion. I can refer you to Angele, who gave birth to a live, doomed, premature baby in an abortion clinic toilet. You can also go here to learn Ashli's dissatisfied-customer story:
http://thesiclecell.blogspot.com/
See which side gets the worse worst-case scenario when they're misled and mistreated.

Paula wrote:
Hello Ms. O'Connor You stated that you are "writing a balanced piece represending both sides of the equation".
Have you also taken time to request information from people who have had positive experiences with CPCs? If so, what sort of groups have you made this request with?
Thank you ahead for your response.
p.s. if indeed you produce a fair and unbiased piece, it will be very refreshing, long overdue, and extremely beneficial to women. But frankly, I would doubt that with the nature of the magazine you represent, they will want to print it. I truly hope my opinion is incorrect, and I wish you well in your intent to be able to publish such a piece with Marie Claire magazine. I hope you are successful and honest.

Annie Banno wrote:
Dear Ms. O'Connor (since you said you'd be checking back here),
I'm not sure what Rachael's guidelines are but most bloggers will not print email correspondence or addresses only upon initial request. Since you appeared not to request that, you lost the right to keep your email offline here. Plus your request to remove it only after you began receiving emails from those who could truly give you a "balanced" accounting of CPCs, makes your motives and intentions suspect at best and unbalanced at worst.
If you want to be outraged at how CPCs have allegedly "deceived" any women, then be outraged at all the truth: and look at this list of women (complete with hotlinks to every single news item; http://realchoice.0catch.com/library/weekly/aa0214 06a.htm ) who've died because of going to CPCs versus those who died by going to legal abortion clinics for legal abortions. The list is made quite easy for you to do your "research" and "reporting", unless of course your only intent was and is to bury your head in the sand regarding these truths.
My email address is smok22andthensome@yahoo.com . Feel free to ask me for more balanced information as well.
Sincerely, Annie Banno

Naaman wrote:
In all fairness, I also like the abortionclinicdays blog, and I am extremely pro-life. Merely admiring a good blog (even if you passionately disagree with the bloggers) does not show any bias by itself.
However...
The fact that she's only looking for "women who have been deceived by CPCs" is much more troubling. As others have said, that's only one side of the story. For a truly-unbiased story, I hope that she is also looking for women who have been helped by CPCs. For extra credit, she can do some research into women who have been deceived by abortion clinics....

Rachael wrote:
Paula,
Elequently put and better said than I could. Thank you!
Annie,
I don't have a comment guideline on this particular issue (although my commenting guidelines can be found on my user information and I also mantain the Harris Protocol. I usually honor requests to maintain privacy, regardless of political stance. You make some good points, though. For those who are interested in contacting her, while her e-mail address is not provided here, her e-mail address can be found at any of the linked blogs, who've also written on this.
Naaman,
When weighing my opinion, I took into account both her applauding abortionclinicdays and her negativity towards CPCs.
And just a friendly reminder to the variety of pro-lifers out there, if you wish to write to Ms. O'Connor I encourage you to use respect and common curtesy. And please refrain from sending threatening or harassing letters, as this won't earn us any more respect or credibility.

Annie B. wrote:
Any new news on Siobhan's article? Is it out yet?

Rachael wrote:
Annie,
I just checked both March and April magazine issues here in the U.S. and it doesn't appear to be out yet. Also, if my readers in the UK could check their magazine issues over there too, that'd be great. The most recent update I have is the one from Jivin' J. Ms. O'Connor, If you are indeed still out there and reading this entry, what is the expected publication date or issue? We look forward to reading the magazine article.

Sunday, February 5, 2006

March for Life and Superbowl

I'm a little slow on the Sanctity of Human Life Sunday and the annual March for Life coverage due to personal circumstances.  After Abortion has rounded up posts covering the March for Life 2 weeks ago. Their posts features both their own experiences and views and share others blogs coverage.

Here in the U.S. it's the 40th annual Superbowl football championship. And we're having a Superbowl Party. Well, I wouldn't call it a party as much as a get together. Just a carry-in with extended family. And my younger sister and her boyfriend came home from college for the weekend (yea!). I'm not sure who I'm rooting for since my favorite team, the Indianapolis Colts blew it in the play offs. We'll see :) I'll post some pics later.

Update:
The Pittsburgh Steelers won against the Seatle Seahawks in the Superbowl, 21 to 10. And I've posted pics of our Superbowl party at my Photobucket photo album.

Wednesday, December 28, 2005

New Study Shows Drinking Tea May Reduce Risk of Developing Ovarian Cancer

A new study has found that tea-drinkers may reduce their risks of developing ovarian cancer by almost half.

The Karolinska Instutite conducted the study, revealing that middle-age women who drink two or more cups of green or black tea every day are likely to cut their chances of developing epithelial ovarian cancer by 46 percent. And each additional cup could lower the risk by another 18 percent.

While Dr. Susanna C. Larsson and her colleagues do admit that additional factors come into play, (ex. tea drinkers were also more prone to be more health conscious in general) the prevalence of the findings are too significant to simply dismiss. “The dose-reponse relationship for tea consumption with ovarian cancer risk makes chance less likely.” says Larsson.

Ovarian cancer is the fourth leading cause of cancer death for women in the U.S. Only 30 percent of women diagnosed with ovarian cancer survive beyond five years.

H/T to Vanessa at Feministing
http://feministing.com/archives/004698.html

Original Comments Made for This Entry:
CatS. wrote on 12-27-2006
Hi Rachael. Thank you for the good info. I suppose I should put my tea kettle to use more:)

Friday, December 23, 2005

Adverse Prenatal Diagnosis & Maternal Health Conditions Information and Support

It's not an easy time for you. You suspect that something's wrong with your pregnancy or baby, and maybe you've had a positive test, which only confirm your fears. Or perhaps you're here seeking out information and/or help for a friend or relative. Here you'll find a wealth of resources and information to educate, empower, and support you. Take a deep breath, try to relax, and then learn everything you can about your situation.

About Prenatal Testing and General Information:

American Pregnancy Association: Birth Defects
Education on diagnosis, prevention, causes, and treatment to help families manage birth defects.
http://americanpregnancy.org/birthdefects/index.htm

American Pregnancy Association: Prenatal Testing
http://www.americanpregnancy.org/prenataltesting/

StorkNet: Pregnancy Complications
http://www.storknet.com/complications/index.html

Association of Birth Defect Research for Children, Inc.
The Association of Birth Defect Children (ABDC) is a non-profit organization, started by parents in 1982, which provides information and support to parents of children with birth defects.
930 Woodcock Road
Suite 225
Orlando, FL 32803
Tel: 407-895-0802
800-313-ABDC (2232)
Fax: 407-895-0824
http://www.birthdefects.org/


Specific Disabilitities/Illness Information:

Absence of Corpus Callosum:
Agenesis of the Corpus Callosum means a complete or partial absence of the bridge between the left and right sides of the brain. In and of itself, the corpus callosum is not necessary for life or health, but conditions associated with ACC can lead to serious medical problems including abnormalities of cerebrospinal fluid or mental retardation. Some individuals will have mild symptoms while others may be severely restricted in their daily life. Treatment is supportive and corrective and can help these individuals reach their full developmental potential, with early educational intervention and special education services in the school, in-home education and support services for the family, behavioral therapy, medication, physical therapy, and occupational therapy as needed, and correctional and supportive treatment of physical abnormalities.

National Organization of Disorders of the Corpus Callosum
http://www.nodcc.org/

Amniotic Band Syndrome:
Amniotic Band Syndrome refers to abnormalities caused by fibrous strands that can entangle or confine developing parts of the fetus. These strands are believed to arise from membranes that form outside the placenta. Symptoms associated with Amniotic Band Syndrome include limb or skull abnormalities, cleft lip/palate, scoliosis, and other, more complex abnormalities. The treatment is supportive with physical therapy, occupational therapy, orthopedic instruments, and when necessary, surgery. Most individuals will have a normal lifespan.

Amniotic Band Syndrome
http://www.amnioticbandsyndrome.com/
Acardiac Twinning (TRAP):

Anencephaly, Encephalocele, Hydrocephaly, Spina Bifida, and Related Conditions:
Anencephaly is a type of neural tube defect (NTD). Babies with anencephaly have major portions of the brain, the skull, and the scalp missing. They usually have normal bodies and functioning organs. The child may be born stillborn or the presence of a brain stem may keep the organs operating for a period of time, and the child may live anywhere from days to weeks, however the condition is ultimately terminal.

Encephalocele is a birth defect that results in a hole in the skull through which brain tissue protrudes. Other abnormalities often occur with encephaloceles. These may include hydrocephalus (excessive fluid in the brain), mirocephaly (abnormally small head), paralysis of the arms and legs, seizures, developmental delays, mental and growth retardation, and/or vision problems. Treatment is supportive and corrective and can help these individuals reach their full developmental potential, with early educational intervention and special education services in the school, in-home education and support services for the family, behavioral therapy, medication, physical therapy, and occupational therapy as needed, and correctional and supportive treatment of physical abnormalities.

Hydrocephalus is an abnormal build up of cerebrospinal fluid (CSF) in the brain that causes ventricles to enlarge and the pressure inside the head to increase. Hydrocephalus occurs when there is an imbalance in the amount of CSF being produced and absorbed. Hydrocephalus is treated by surgically placing a shunt in the brain, which drains into the abdomen, where the excess fluid is then reasorbed. Most individuals with this condition will have a normal lifespan and lead normal lives.

Anencephaly Blessings from Above
A pro-life anencephaly support group. A christian forum to encourage and support families whose baby has been newly diagnosed; who are currently carrying a baby to term or have carried a baby to term; who are considering, in the midst of, or having experienced a subsequent pregnancy; and any others who have been touched by anencephaly - parents, relatives, professionals, or friends who wish to share their stories and support. This forum respects the sanctity of life from conception to natural death.
http://clubs.yahoo.com/clubs/anencephalyblessingsfromabove

Anencephaly Support Foundation
Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
asf@asfhelp.com
Tel: 888-206-7526
http://www.asfhelp.com/

Anencephaly-Info
A comprehensive website of of parents stories, medical information, support, and resources
http://www.anencephalie-info.org/index.php

Faith Hope
A diagnosis of anencephaly has not stopped this young single mom from embracing every day, every moment, of her child's life, who lived beyond birth with this condition. A wonderful story of hope and encouragement for other mothers experiencing this devastating diagnosis.
http://babyfaithhope.blogspot.com/

Hydrocephalus Organization
Non-profit support and advocacy group information on resources and education for families and individuals.
870 Market Street, Suite 705
San Francisco, CA 94102
Tel: (415) 732-7040 or toll-free (888) 598-3789
info@hydroassoc.org
http://www.hydroassoc.org/

Spina Bifida Association
Voluntary health agency dedicated to support, education, advocacy, research and service
4590 MacArthur Boulevard, NW
Washington , DC 20007
Phone: 202-944-3285
Toll Free: 800-621-3141
Fax: 202-944-3295
http://www.spinabifidaassociation.org/

Anophtalmia/Microphtalmia (absent or small eyes):
Anophtalmia means that one or both eyes didn’t form during the early stages of pregnancy. Congenital anophtalmia may occur alone or with other malformations. Microphthalmia means that the eye/s started to form during pregnancy but stopped, leaving the baby with eyes that are smaller than normal. Treatment is supportive and corrective and can help these individuals reach their full developmental potential, with correctional and supportive treatment of physical abnormalities.

International Children's Anophthalmia Network
http://www.anophthalmia.org/

Micro and Anophthalmic Children's Society
http://www.macs.org.uk/

Micropthalmia Group
http://groups.yahoo.com/group/Microphthalmia

Anorectal Malformations (imperforate anus, rectal atresia):
Anorectal malformations are a group of birth defects than involve the external opening of the anus preventing the normal passage of stool. The anal opening may be smaller than normal size; in an abnormal location or not visible upon examination. Imperforate anus is usually present along with other birth defects—spinal problems, heart problems, tracheoesophageal fistula, esophageal atresia, renal anomalies, and limb anomalies are among the possibilities. Treatment for anorectal malformations includes immediate surgery to open a passage for feces and for the other accompnying conditions treatment consists of supportive treatment with physical therapy, occupational therapy, orthopedic instruments, and when necessary, surgery..

The Pull-Thru Network
http://www.pullthrough.org/

Cincinnati Children's Hospital: Imperforate Anus / Anorectal Malformations
http://www.cincinnatichildrens.org/health/info/abdomen/diagnose/anorectal-malformations-imperforate-anus.htm

Cleft Lip and Cleft Palate:
An oral cleft is a split or separation in the baby’s lip and/or palate. Cleft lip means that the two sides of the upper lip did not grow together properly. Cleft palate is a split or opening in the roof of the mouth. The opening in the lip or palate may be unilateral, only on one side, or bilateral, on both sides. Cleft lip and palate can occur together or individually. Cleft lip and palate is very treatable; however, the kind of treatment depends on the type and severity of the cleft. Possible treatment options include speech therapy, prosthetics (to cover or to close the gap made by the cleft palate), lengthening of the palate, and surgical procedures. A cleft lip or palate can be successfully treated with surgery, especially so if conducted soon after birth or in early childhood, and the scar becomes less visible with age. Speech problems are usually treated by a speech-language pathologist.

American Cleft Palate-Craniofacial Association/Cleft Palate Foundation
1504 East Franklin Street, Suite 102
Chapel Hill, NC 27514-2820
(919) 933-9044
http://www.cleftline.org/

Cleft Lip and Palate Association
First Floor Green Man Tower
332B Goswell Road
London EC1V 7LQ
http://www.clapa.com/

Chromosomal Abnormalities:
Trisomy 13 (Patau Syndrome)
Patau syndrome, also known as trisomy 13 and trisomy D, is a chromosomal abnormality, a syndrome in which a patient has an additional chromosome 13, which means each cell in the body has three copies of chromosome 13 instead of the usual two copies. Medical management of children with Trisomy 13 is planned on a case-by-case basis and depends on the individual circumstances of the patient. Treatment of Patau syndrome focuses on the particular physical problems with which each child is born. Many infants have difficulty surviving the first few days or weeks due to severe neurological problems or complex heart defects. Surgery may be necessary to repair heart defects or cleft lip and cleft palate. Physical, occupational, and speech therapy will help individuals with Patau syndrome reach their full developmental potential.

Trisomy 18 (Edwards Syndrome)
Trisomy 18 (T18) (also known as Trisomy E or Edwards syndrome) is a genetic disorder caused by the presence of all or part of an extra 18th chromosome. Only 50% of liveborn infants live to 2 months, and only 5–10% survive their first year of life. Major causes of death include apnea and heart abnormalities. However, it is impossible to predict the exact prognosis of a child with Edwards syndrome during pregnancy or the neonatal period. The median lifespan is 5–15 days. One percent of children born with this syndrome live to age 10, typically in less severe cases of the mosaic Edwards syndrome.

Trisomy 21 (Down Syndrome)
Down syndrome is “a developmental abnormality characterized by trisomy of human chromosome 21" Most individuals with Down syndrome have mental retardation in the mild (IQ 50–70) to moderate (IQ 35–50) range, with individuals having Mosaic Down syndrome typically 10–30 points higher. Cognitive development in children with Down syndrome is quite variable. It is not currently possible at birth to predict the capabilities of any individual reliably, nor are the number or appearance of physical features predictive of future ability. Due to the nature of prenatal screens, each has a significant chance of a false positive, suggesting a fetus with Down syndrome when, in fact, the fetus does not have this genetic abnormality. Screen positives must be verified before a Down syndrome diagnosis is made. Treatment for individuals with Down Syndrome is supportive and corrective and can help these individuals reach their full developmental potential, with early developmental/educational intervention and special education services in the school, in-home education and support services for the family, behavioral therapy, medication, physical therapy, and occupational therapy as needed, and correctional and supportive treatment of physical abnormalities.

99 Balloons
A video journal created by parents documenting the life of their son Elliot, who was born with Trisomy 18 and lived 99 days.
http://www.youtube.com/watch?v=th6Njr-qkq0
http://www.ninetynineballoons.com/

A Trisomy 18 Journey
Support website with information on Trisomy 18/Trisomy 13, personal stories, and resources for families, parents, and medical professionals.
http://www.geocities.com/wilsfordmindy/

Band of Angels
Offers outreach, education, and support to parents and families of children with Down Syndrome as well as awareness and education for the medical professionals and the general public.
http://www.bandofangels.com/

CDAC
Offers scientific research, information, education, and suuport to parents and families of children with Down Syndrome as well as awareness and education for the medical professionals and the general public. Written by parents of a child with Down Syndrome.
http://www.cdadc.com/ds/

Hidden Treasures: The Trisomy 21 Journey
Parents from all around the world, who would like to share their stories.
http://hiddentreasuresthet21journey.blogspot.com/

International Mosaic Down Syndrome Association
The International Mosaic Down Syndrome Association is designed to assist any family or individual whose life has been affected by mosaic Down syndrome
http://www.imdsa.org/

Living with Trisomy
Support for Trisomy Families
http://www.livingwithtrisomy.org/

Mosaic Down Syndrome
Karlee has mosaic Down Syndrome. Her site also contains a whole page of family stories of other mosaic Down Syndrome children from around the world complete with e-mail links.
http://www.mosaicdownsyndrome.com/index.htm

National Down Syndrome Society
Offers advocacy, outreach, education, and support and resources for families, parents, and medical professionals. Helpline: 1-800-221-4602
http://www.ndss.org/

Pathfinder Village
A place where persons with Down Syndrome can get the support and acceptance they need to live productive lives.
http://www.pathfindervillage.org/

Recommended Down Syndrome Sites on the Internet
Compiled by Len Leshin, M.D.
http://www.ds-health.com/ds_sites.htm

SOFT
Support Organization for Families of Trisomy, a nonprofit volunteer organization offering support for parents who have had or are expecting a child with a chromosome disorder and education to families and professionals interested in the care of these children.
http://www.soft.org/

Three Weddings
A journal created by a mother, documenting the joys and challenges of raising 3 daughters, including daughter "Peanut" who was born with Trisomy 21 (Down Syndrome). Also, under her Blogroll, you can find links to blogs of other parents with infants/children with Down Syndrome.
http://www.my3weddings.com/

Unique - Rare Chromosome Disorder Support Group (UK)
http://www.rarechromo.org/

Video: DOWN SYNDROME!? not MY baby!!
Information and support by a parent for other parents of a child newly diagnosed with Down Syndrome
http://www.youtube.com/watch?v=JmjLW0nLmzA

Video: Dreams
Dreams features children and adults who have Down syndrome talking about their dreams and what they're proud of in their lives. This fun and inspirational video made by Scott and Julia Elliott celebrates the work of the National Down Syndrome Society and the larger Down syndrome community.
http://www.youtube.com/watch?v=-_-P4t2jR1g

Video: Grace: A Story of a Family and Down Syndrome
http://www.youtube.com/watch?v=VNvayF6ASOo

Video: "My Wish"
A video made by a family about their son with Down Syndrome, Cole
http://www.youtube.com/watch?v=lMdeYGEKEp0

Chromosomal Abnormalities (Others):
Prader-Willi syndrome (deletion on chromosome 15)
Cri-du-chat (cat cry) syndrome (deletion on chromosome 5)
Wolf-Hirschhorn syndrome (deletion on chromosome 4)
DiGeorge syndrome also known as 22q11 deletion syndrome ( deletion on chromosome 22)

5P-Society
(Cat Cry Syndrome)
P.O. Box 268
Lakewood CA 90714
(888) 970-0777
http://www.fivepminus.org/

Chromosome Deletion Outreach
P.O. Box 724
Boca Raton FL 33429
(561) 395-4252
http://www.chromodisorder.org/CDO/

Genetic and Rare Conditions Site
Medical Genetics, University of Kansas Medical Center
Lay advocacy and support groups, information on a wide variety of genetic conditions/birth defects for professionals, educators, and individuals.
http://www.kumc.edu/gec/support

The National Organization for Rare Disorders (NORD)
55 Kenosia Ave.
P.O. Box 1968
Danbury CT 06813
Tel: 1-800-999-6673
http://www.rarediseases.org/

Prader-Willi Syndrome Association
5700 Midnight Pass Rd., Suite 6
Sarasota FL 34242
(800) 926-4797
http://www.pwsausa.org/

Dandy-Walker syndrome (DWS)
Treatment for individuals with Dandy-Walker syndrome generally consists of treating the associated problems, if needed. A special tube (shunt) to reduce intracranial pressure may be placed inside the skull to control swelling. Treatment may also consist of various therapies such as occupational therapy, physical therapy, speech therapy or specialized education. Services of a vision teacher may be helpful if the eyes are affected.

Abbygail Marie
A mother and child's journey with Dandy-Walker syndrome
http://www.abbygailmarie.blogspot.com/


Ehlers-Danlos Syndrome (EDS) (also known as "Cutis hyperelastica"):
EDS is a group of inherited connective tissue disorders, caused by a defect in the synthesis of collagen (a protein in connective tissue). There is no known cure for Ehlers Danlos Syndrome. The outlook for individuals with EDS depends on the type of EDS with which they have been diagnosed. Symptoms vary in severity, even within one sub-type, and the frequency of complications changes on an individual basis. Some individuals have mild symptoms while others are severely restricted in their daily life. The treatment is supportive with physical therapy, occupational therapy, nutritional, orthopedic instruments, and when necessary, surgery. Most individuals will have a normal lifespan.

Fetal Lower Urinary Tract Obstruction (LUTO):


Fragile X Syndrome (Martin-Bell syndrome):
Characteristics of the syndrome include intellectual disability, an elongated face, large or protruding ears, flat feet, larger testicles in men (macroorchidism), low muscle tone. Speech may include cluttered speech or nervous speech. Behavioral characteristics may include stereotypic movements (e.g., hand-flapping) and atypical social development, particularly shyness, limited eye contact, memory problems, and difficulty with face encoding, and some individuals with the fragile X syndrome also meet the diagnostic criteria for autism. Currently, the syndrome can be treated through behavioral therapy, special education, medication, and when necessary, correctional and supportive treatment of physical abnormalities

Heart Malformations and Defects:
A congenital heart defect is any abnormality of the heart’s structure or function. The following are a fee of the most common types:

Hypoplasia: Hypoplasia can affect the heart, which typically results in the failure of either the right ventricle or the left ventricle to develop adequately, leaving only one side of the heart capable of pumping blood to the body and lungs.

Septal Wall Defects: The septum is a wall of tissue which separates the left heart from the right heart. It is comparatively common for defects to exist in the interatrial septum or the interventricular septum, allowing blood to flow from the left side of the heart to the right, reducing the heart's efficiency.

Cyanotic Defects: Cyanotic heart defects are called such because they result in cyanosis, a bluish-grey discoloration of the skin due to a lack of oxygen in the body. Such defects include persistent truncus arteriosus, total anomalous pulmonary venous connection, tetralogy of Fallot, transposition of the great vessels, and tricuspid atresia.

Sometimes congenital heart defects improve with no treatment necessary. At other times the defect is so small, it does not require any treatment. Most of the time congenital heart defects are serious and are treatable with surgical repairs in infancy or childhood and/or medications. Interventional cardiology now offers patients minimally invasive alternatives to surgery.

Congenital Heart Information Network
information, support services, financial assistance and resources
http://tchin.org/

PediHeart:
Information, support, and resources for parents and medical professionals
http://www.pediheart.org/index.html

Little Hearts
Support for parents of children with heart defects
http://www.littlehearts.net/

Limb Abnormalities:
The Clubfoot Club
http://www.clubfootclub.org/

E-Hand.com (Electric Handbook of Hand Surgery): Syndactyly
Information on the condition as well as treatment and therapy options.
http://www.eatonhand.com/hw/hw019.htm

E-Hand.com (Electric Handbook of Hand Surgery): Polydactyly
Information on the condition as well as treatment and therapy options.
http://www.eatonhand.com/hw/hw024.htm

Helping Hands Foundation
A not-for-profit support group made up of parents who have children with upper limb differences.
http://www.helpinghandsgroup.org/

Reach
This UK group gives support and advice to families with children with a hand or arm deficiency.
http://www.reach.org.uk/

Super Hands Network
Hope and encouragement for kids with upper limb differences
http://www.superhands.us/

Polycystic Kidney Disease/

PKD Foundation
The PKD Foundation is the only organization, worldwide, dedicated to promoting research to find a cure for polycystic kidney disease (PKD) and improving the care and treatment of those it affects.
http://www.pkdcure.org/
Potter's Syndrome/Renal Agenesis

Potter's Syndrome Website
Whether your a family whose baby has just been diagnosed with Potter's Syndrome (Renal Agenesis, Potter's Sequence) or a family member or friend, or even someone who already has lost a baby to Potter's Syndrome and is looking for answers, this website was made for you.
http://www.potterssyndrome.org/

Selective Intrauterine Growth Restriction (SIUGR)
Thanatophoric Dysplasia
Thanatophoric dysplasia is a severe skeletal disorder characterized by extremely short limbs and folds of extra skin on the arms and legs. Children with this condition are usually stillborn or die shortly after birth from respiratory failure. Those who make it to birth will have difficulty breathing on their own and will require respiratory support such as high flow oxygen through a canula or ventilator support via tracheostomy.

Turner Syndrome
Turner syndrome or Ullrich-Turner syndrome (also known as "Gonadal dysgenesis") encompasses several conditions, of which the absence of the X sex chromosome is most common. It is a chromosomal abnormality in which all or part of one of the X sex chromosomes is absent.

Turner Syndrome Society of the US
The Turner Syndrome Society of the United States creates awareness, promotes research, and provides support for all persons touched by Turner Syndrome.
http://www.turnersyndrome.org/

Twin to Twin Transfusion Syndrome

Twin to Twin Transfusion Syndrome Foundation
information, the various treatments available, complications of multiple pregnancy, valuable support
http://www.tttsfoundation.org/
Ventriculomegaly
Ventriculomegaly is a brain condition that occurs when the lateral ventricles become dilated. The most common definition uses a width of the atrium of the lateral ventricle of greater than 10 mm.

UCSF Fetal Treatment Center: Ventriculomegaly
http://fetus.ucsfmedicalcenter.org/ventriculomegaly/

Maternal Health Conditions:

Diabetes and Pregnancy (from the American Diabetes Association
"Health care providers no longer discourage women with diabetes from becoming pregnant. We now know that the key to a healthy pregnancy for a woman with diabetes is keeping blood glucose (sugar) in the target range -- both before she is pregnant and during her pregnancy. To do this, you need a diabetes treatment plan that keeps meals, exercise, and insulin in balance. This plan will change as you change with pregnancy. You will also need to check your blood glucose often and keep a record of your results. With your blood glucose in the target range and good medical care, your chances of a trouble-free pregnancy and a healthy baby are almost as good as they are for a woman without diabetes."
http://www.diabetes.org/gestational-diabetes/pregancy.jsp

Hyperemesis Gravidarum
An entry I've created for awareness about HG with links to information sites, organizations and support boards.
http://mylifeinreflection.blogspot.com/2005/07/hyperemesis-gravidarum-its-beyond.html

Preeclampsia Foundation
http://www.preeclampsia.org/

Pregnant With Cancer
Information, resources, support, and hope
http://www.pregnantwithcancer.org/

Study Finds Abortion Not Needed When Pregnant Women Face Cancer Treatment
Dr. Beth Beadle, who works at the prestigious medical center and is the lead author of the study, told AP that both mother and baby can be cared for during treatment.
Ruth O'Regan, an associate professor at Emory University's Winship Cancer Institute in Atlanta, also told AP that cancer doctors can treat both mother and child without the need for an abortion.
http://www.ajc.com/i/content/health/stories/2009/02/09/breast_cancer_pregnancy.html


Continuing a Pregnancy After an Adverse Prenatal Diagnosis:

A Child of Promise
A ministry of the First Evangelical Free Church, A Child of Promise is a support group aimed at encouraging families to continue their pregnancy following an adverse pregnancy diagnosis. They currently provide individual counseling, and would like to eventually provide a monthly or bi-monthly support group meetings as they have enough families. A Child of Promis is a Christian organization, but is open to those of all faiths and to both mothers and fathers.
1375 Carman Rd.
Manchester, MO 6301
Tel: 636-227-0125
http://www.achildofpromise.org/

Abiding Hearts
A support system for parents continuing pregnancy after prenatal diagnosis of fatal (or non-fatal) birth defects; unplanned pregnancies included. Also a newsletter for parents who choose to carry a baby with a genetic defect to term. A $5 donation is requested to help defray mailing costs.
P.O. Box 904
Libby, MT 59923
Tel: 406-293-4416
Fax: 406-587-7197

Alexandra's House
A Charitable Perinatal Hospice and Infant Refuge, founded and located in Kansas City, Missouri, serving families across the United States of America. Their mission is to give hope, comfort, and meaning to suffering families and their very special babies. These are babies that are expected to die at or shortly after birth, but their parents make the heroic decision to carry their babies to term, in spite of its desperate outcome.
http://www.alexandrashouse.com/

American Association of Pro Life Obstetricians and Gynecologists
Provides referrals to medical doctors who are willing to provide care to women carrying a high risk pregnancy or adverse prenatal diagnosis to term.
http://www.aaplog.org/

Be Not Afraid
Be Not Afraid is an online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within BeNotAfraid.net are presented as a resource for those who may have been asked to choose between terminating a pregnancy or continuing on despite the diagnosis. The BeNotAfraid.net families faced the same decision and chose not to terminate. By sharing their experiences, they hope to offer encouragement to those who may be afraid to continue on.
http://www.benotafraid.net/

Carrying to Term Pages
After a devastating prenatal diagnosis, it's too often assumed that a mother will automatically terminate the pregnancy. This website was designed for those who are determined to carry their unborn child to term despite the child's fatal condition. While many tips come from personal experience, this site actively solicits tips from other mothers and fathers who have been there.
http://www.geocities.com/tabris02/index.html

High Risk Moms
A support group for and quarterly newsletter for those experiencing problem pregnancies. They provide perinatal telephone contact with moms who have experienced similar situations.
P.O. Box 389165
Chicago, IL 60638-9165
Tel: 708-515-5453

Miracle Angels Support Group
An email support group for parents who choose to continue their pregnancy after recieving a devastating prenatal diagnosis, whether or not the prognosis is fatal.
http://health.groups.yahoo.com/group/MiracleAngels/

My Child, My Gift: A Positive Response to Serious Prenatal Diagnosis
A well-researched yet easily understandable, positive guide when you need to make sense out of what seems to be senseless.
http://mychildmygift.com/

National Challenged Homeschoolers Associated Network
Christian Families Homeschooling Special Needs Children
http://www.nathhan.com/

Poor Prenatal Diagnosis Advice And Support
Information on treatment options, where to go for Information/Support/Resources, referrals for Fetal Treament facilities- prenatal corrective surgery, and stories from parents of a child with a condition.
http://www.geocities.com/pregnancyhelpnow/termination_for_medical_reasons.html

Prenatal Hospice: A Gift of Time
Compassionate support and resources for parents who have chosen to carry to term.
http://www.perinatalhospice.org/

Prenatal Partners for Life: Support, Information, and Encouragement
Prenatal Partners for Life is a group of concerned parents (most of whom have or had a special needs child), medical professionals, legal professionals and clergy whose aim is to support, inform and encourage expectant or new parents. We offer support by connecting parents facing an adverse diagnosis with other parents who have had the same diagnosis.
http://www.prenatalpartnersforlife.org/pages/1/index.htm

Sidelines National Support Network
P.O. Box 1808 s
Laguna Beach, CA 92652
Tel: 1-888-447-4754.
A national network of volunteers offering support, education, advocacy and resources to families dealing with high-risk pregnancies. They publish a magazine, LeftSide Lines. To request support or information, or to order the magazine, call the above toll-free number.
http://www.sidelines.org/

String of Pearls
String of Pearls was created to provide a nurturing and safe place for families as they navigate the path following a fatal prenatal diagnosis that will result in the death of their baby prior to, or shortly after birth. The path between grief and hope is a difficult place to walk; our desire is to provide guidance, compassion and practical suggestions as plans to honor the life of pre-born babies are crafted. Each life has a story worthy of telling and we are here for support as stories are lovingly written.
http://stringofpearlsonline.org/

Waiting with Love
For parents who choose to continue a pregnancy knowing their unborn baby will die before or shortly after birth and for families who learn their newborn will die
http://www.erichad.com/wwl/

Waiting With Love Multiple Pregnancy - Knowing Ahead
A checklist for families who are expecting multiples and know that one or more of the babies will not survive. Includes things you can do before birth and to prepare for birth and afterward.
http://www.erichad.com/wwl/twinsck.htm

Welcoming Babies with Down Syndrome
Information and support for parents who choose to carry their baby to term after a Down Syndrome diagnosis.
http://www.babycenter.com/0_welcoming-babies-with-down-syndrome_1817.bc

Welcoming Babies with Spina Bifida/Hydrocephalus
Information and support for parents who choose to carry their baby to term after a Spina Bifida/Hydrocephalus diagnosis.
http://www.waisman.wisc.edu/~rowley/sb-kids/wbwsb.html


Memorials and Healing for Loss:

A Place to Remember
This site offers information and support for those who have been faced with a crisis during pregnancy or the death of a baby. There is also an on-line bookstore with many books that might be helpful to families.
http://www.aplacetoremember.com/

Mommies Enduring Neonatal Death
M.E.N.D. (Mommies Enduring Neonatal Death) is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.
http://www.mend.org/

Mothers in Sympathy and Support
This website provides support to families after the death of their baby or young child in the form of confrences, an online memorial, and healing resources.
http://www.misschildren.org/

"Now I Lay Me Down to Sleep"
When a baby or infant has died, Now I Lay Me Down to Sleep, through its nationwide network of professional photographers, will arrange a tasteful private sitting at the hospital with no charge for any services or pictures.
http://www.nowilaymedowntosleep.org/

Remembered Forever
This site was created to allow grieving users to build personalized memorials dedicated to their loved ones. The site was created after a sudden loss in the family, and Ian McIntosh and his whole family found it an excellent way of not only easing the grief process, but celebrating the life of a family member. Memorialization is important to families, and via the Remembered Forever site, it is unique in that it allows all members of the family to place their thoughts, memories, and condolences in one place.
http://www.remembered-forever.org/

SHARE Pregnancy and Infant Loss Support
SHARE's mission is to serve those who are touched by the tragic death of a baby through miscarriage, stillbirth, or newborn death.
http://www.nationalshareoffice.com/

For a Full Listing of Websites and Resources for Genetic Disorders try Genetic and Rare Conditions Site
This List of Websites for Poor Prenatal DX

Resources found through:
Google Search - poor prenatal diagnosis
Prenatal Diagnosis/Prognosis Support
University of Wisconsin-Madison Family Village

Tuesday, December 20, 2005

Today's Pro-Life Blogroll

Jivin Jehoshaphat cues us in to the newest abortion-promoting t-shirt. The Richmond Reproductive Freedom Project has created a new t-shirt for post-abortive women who are looking to fund another's abortion. This one reads, "ask me about my abortion!"

Naaman the Ex-Leper bids us fairwell. From a previous post: "In hindsight, I am becoming a little burned-out with respect to online debate. Please don't confuse burn-out with defeatism. I still believe that the handwriting is on the wall for the death of 'choice'."  And from this current post: "... And now I'm ready to close the blog. I have responsibilities to my family, my church, my Via de Cristo brothers & sisters, and my employer." Fairwell, Namaan. Although I haven't always seen eye to eye with you, you were often the calm voice of reason between po-life and pro-choice. You will be missed. I wish you all the best for yourself, Mrs. Naaman, and little Naaman.

Christina at RealChoice explains the under-reporting of legalized abortions and inflation of maternal mortality numbers. "...any death of a pregnant woman, or of a woman who was known to have been recently pregnant, gets coded as "maternal mortality," even if her death had nothing to do with the pregnancy (i.e. automobile accident), or if her death was due to an induced abortion."

Dawn Eden of The Dawn Patrol temporarily comes out of hibernation to give us excellent pieces on Planned Parenthood caught in a proud confession of covering up rape and enabling an 11-year-old girl's rapist to continue his crimes. Also see crime expert Steve Huff's take on the matter, Part I and Part II

Annie Banno of After Abortion has put up a great list of links to news articles giving background on accusations that have been made against Planned Parenthood in various blogs

The Raving Athiest writes a piece entitled, "Don't Ask, Don't Care", which is about the non-cholant attitudes of some members of the Haven Coalition, an organization that provides overnight housing for women who flock to New York for elective, late second-trimester abortions.

Correction:
I had unintentionally mistyped Steve Huff's name and this has now been corrected. My apologies to Steve.